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Thankyou for your help!!!
I want to thank everyone for
their very generous help and support. To those new to the site I was
diagnosed with uterine cancer in mid 2005. I have had my surgery and am
on the long road to recovery. I am actually feeling a lot better and
didn't really realise until I did just how unwell I have been for
quite some time.
I did eventually
obtain care for Alex through DADHC (The Department of Aging,
Disability and Homecare). It was the bare minimum (18 hours a day
for 10 days and 10 hours a day for four days). I was still far from
well when this care was totally withdrawn and so St
Vincent de Paul very generously paid for an additional 2 weeks of
night time / morning care and another week of alternate nights.
(they offered a lot more!!)
Without the support of
St Vincent de Paul, David Richardson from Channel 7 and Alan Jones from 2GB, my friends
and the support of all of Australia it wouldn't have happened. And I
owe everyone involved a huge debt, a debt which I doubt that I will ever be
able to repay.
It still remains that
the whole of disability services in Australia is in total chaos.
Recent statistics are showing that less than 2% of the population
who are disabled are even able to access disability services. More
recently I learnt that a mother was forced to place her teenage
daughter in a nursing home for the aged so that she could have
needed surgery.
Consequently I will
continue to lobby, not just for those effected by trisomy, but for
all those who need access to disability services and do not receive
them. As a consequence I will continue to maintain my "Comments on
Life" page.
If you wish to add
your own comments please write to me. Many people have written
wanting to contribute monetarily and I have finally given in. If you
wish to support the work of this site, or the Trisomy email based
support group you can donate using the secure Paypal link.
To visit Karen's "Comments on
Life Page" please click
here |
